Youth Engagement – Young voices on Trusted Health Ecosystems

Transcript

We had the pleasure to ask six global youth representatives what they think about our Trusted Health Ecosystems-concept. Our interview partners from the Digital Transformations of Health Labs and the WHO Youth Council have given us valuable feedback in this video. Tomiwa Akinsanya (Nigeria), Yifan Zhou (Canada), Caroline Knop (Germany), Soe Yu Naing (Myanmar), Kristina Almazidou (Greece) and Mellany Murgor (Kenya) have their say.

Take a look at the many different answers:

Yifan: I like the Trusted Health Ecosystems concept because it simplifies a lot of things for me.

Caroline: I like that the concept is really comprehensive.

Soe Yu: It also addresses the issue of trust and transparency.

Tomiwa: What I like most about the concept is the fact that it integrates trust into its theme.

Yifan: I can find all the information on the platform and that’s a very simplification, that’s a big thing for me.

Tomiwa: That is one thing that young people across the world need at the very moment. Because they expect transparency from their government. They expect transparency for their health data and they expect transparency while practicing digitally online.

Kristina: I like the fact that it’s a win-win situation, all the data of the patient history is in one place. So it is accessible for both the patients and also the health providers.

Mellany: What I like most about this concept is the fact that it’s going to be inclusive and it looks like it’s going to be a one-stop-shop for all information that we need in terms of health.

Yifan: I can find all the information on the platform and that’s a very simplification, that’s a big thing for me.

Mellany: Looking at the health platform, I think it’s important to consider integrations with other aspects over and above health that are already in digital platforms.

Yifan: It’s important for us to access the platform that’s easy, that’s not going to add onto any additional workflows that we already have.

Caroline: With Trusted Health Ecosystems, we’ll once have a platform which integrates all the different solutions that are already there.

Soe Yu: If you really want to work for young people make it simple, make it relatable, and make it powerful, that we feel that we are represented in the platform.

Tomiwa: I think that young users need to have a friendly interface when it comes to utilizing digital applications.

Mellany: In terms of the young people over and above the tailored information, I think it would be very important to look at the transitions in terms of when the young people transition into adulthood, but also the various changes that can happen in their lives.

Caroline: For young people, it’s really important to include preventive aspects, because a lot of young people don’t have chronic diseases at the moment.

Kristina: And also we should not forget the marginalized groups.

Caroline: It needs to be accessible and have features for people who have disabilities as well. It needs to be accessible in different languages and adapt to different cultural backgrounds. It’s really important to include all people in the health platform.

Yifan: For me, I want something simple, that solves my biggest problem. And one of my biggest problems with the healthcare system is not knowing where to go, how to navigate it. So if there is a platform, that helps me navigate the system in one click or something, that would be perfect.

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Youth Engagement – How can young people be involved in the design of a health platform?

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Intro

Well, I think youth input is often missing in addressing the specific needs of youth in these digital health solutions.

What role should young people play in shaping the future of digital health?

So young people are the experts of their own experience, right? That’s the primary area that you really need their insights on, because sometimes you have digital health solutions being created and no young person has been consulted on its development. And you can’t create a solution for someone without asking them what they’d like to see.

So young people will help to create that vision of, one, identifying the problems, and then two, identifying what potential solutions would work for them and that they would actually utilize. And then three, allowing them to also help in the implementation.

But I think primarily their expertise is their experience as a young person in this modern world.

How well do digital platforms address the specific needs of young people?

Well, I think youth input is often missing in addressing the specific needs of youth in these digital health solutions. Young people are very concerned about issues like privacy, especially around their data. And they’re also very concerned about mental health and the impacts of all tech solutions on their mental health.

So I think right now we’re in a space where there are lots of opportunities now for young people to get more involved. And I think young people are seizing that as much as they can. But there’s always going to be room for more input and more co-creation with young people for these digital health platforms.

How can policymakers and healthcare providers support youth participation in digital health ecosystems?

So I would say that they can better assist young people in participating by first just listening and creating the opportunities for these kinds of conversations and discussions. And, you know, I think that the young person who is in rural Guatemala or is an indigenous person in Guatemala has a very different experience from someone who’s coming from the Caribbean or coming from Africa. And so we must have these different spaces where we look at the types of young people in all their diversities and ensuring that we are as inclusive as possible when creating these tables for young people to have a seat.

The second point I would say here is it’s important to put resourcing behind the conversations that we’re having. So, yes, we’ll speak and it’ll be a great time, fancy event. But what are the action items that come out of it? And what are the concrete commitments that are coming from policymakers or different organizations as they’re supporting youth inclusion here?

So it’s great to have the ideas, but we need the funding to implement it as well.

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Danielle Mullings is a digital transformation consultant for health and education with a degree in Science and Technology. She discovered her passion for technology at Campion College, excelling in the Caribbean Advanced Proficiency Examination (CAPE) Computer Science. Danielle is an advocate for using technology to drive societal change and has worked as the Impact & Partnerships Officer for Transform Health, a global coalition aimed at universal health coverage. She has also been involved in various youth digital health initiatives and served as a UNICEF U-Report Jamaica ambassador.

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Your feedback is important to us

To contact our project team, please use our form. We look forward to your message and will get back to you as soon as possible.

Youth Engagement – Why is young people’s perspective on digital health so crucial?

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Transcript

Intro

I think each individual on this planet is always going to be an expert in their own experience, and that in and of itself is very valuable.

What is the concept of meaningful youth engagement?

Meaningful youth engagement really consists of two things. One is listening, and the second piece is action. Now, there’s so many young people that come in their various diversities, right? And so one thing I always find interesting is that you’ll have one young person who may come from a certain place in society. Maybe they have different socioeconomic standings. Maybe it might be geographic barriers that they may be facing.

Each person’s challenges and barriers are going to be different. So it’s very important that as we consider this concept of meaningful youth engagement, we’re really considering what are the different types of young people who are affected by this. In healthcare, that’s very broad, and we can continue to escalate that. But who are the main persons who aren’t being listened to and heard right now, and how can we take action to alleviate the issues and challenges that they’re having? Sometimes we’re invited to the table, and then nothing happens after that. So it’s important to take action on the feedback and insights given.

What are the primary challenges young people face when trying to engage in digital health initiatives?

So I think the first issue that young people face is just a lack of awareness of what opportunities and spaces there are to get involved in. Sometimes these aren’t adequately, you know, socialized or made aware to everyone. The second challenge that is pretty big is going to be resourcing. Because sometimes young people have, you know, lots of different ideas. We are a generation of innovators. But we don’t always have the resources to be able to actually implement it. And I think that leads into the third challenge, which is just about, you know, not always having decision makers being willing to listen to us. They might say, you’re too young, you know, you don’t have enough experience, you don’t know anything. Everyone deserves a space to be able to speak. But I think each individual on this planet is always going to be an expert in their own experience. And that in and of itself is very valuable. You need a young person in, you know, rural Guatemala to tell you what their lived experience is. Or indigenous persons from other areas of Latin America. Or someone living in the Caribbean on an island for their entire life. Like, all these experiences are vastly different. And we need those spaces and those opportunities to be able to share our own experiences.

What advice would you give to youth organizations looking to get involved in digital health?

So as a youth organization, the first thing you want to do is ensure that you are very representative. And, you know, you may have a handful of, representatives within your organization that go out and speak. But you want to ensure that you’ve actually spoken to the communities and the communities of people where you come from. So you want to ensure that if you’re coming from Jamaica, you’re speaking to not just those who are from Kingston like I am, but those were from more rural communities like, St. Elizabeth or Mandeville. So it’s important to have that combined perspective.

So the second point I would give here is around the importance of digital literacy and understanding. And we have to ensure that the solutions or the world that we’re trying to advocate for doesn’t forget the world that we’re currently in right now. And so any community that you’re advocating for, you have to assess where they are today and what tangibly can happen in the next year or two years. Some communities don’t have internet access. Or if they do, some don’t understand how to use a computer adequately. And you have to look at the specific needs of the people there and what’s the next best digital health tool that can assist them.

What are the future trends in digital health from young people’s perspective?

I’ll speak about what young people want to see. And one is going to be a greater focus on mental health. Interestingly, young people all over the world, especially in the region of Latin America and the Caribbean, believe that this is a high interest area. And so I believe we’re going to see more digital health solutions within that space.

The next one is going to be a focus on data privacy and how we communicate how our data is being used on these platforms. I think that that’s something young people want to see so much of. And I hope that policymakers and decision makers and different, you know, private entities will also take that into consideration.

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Your feedback is important to us

To contact our project team, please use our form. We look forward to your message and will get back to you as soon as possible.